FoI Number
2022-637
Subject
Epilepsy Treatment
Date Received
12/01/2023
Request and Response

I would like to please request the following information, with regards to treatment of Epilepsy in your trust/ board.

In the last 12 months of available data:

1. a) What number of unique patients have been treated for Lennox-Gastaut syndrome, Dravet Syndrome and Tuberous Sclerosis Complex? Please give answers for each condition separately.

b) For each indication (Lennox-Gastaut syndrome, Dravet Syndrome and Tuberous Sclerosis Complex), what number of these have been treated in a paediatric environment?

2. How many patients have been treated with Epidyolex in a paediatric environment?

3. Can you please detail which NHS Trusts/ Health Boards these patients have been referred from?

In accordance with FOISA s 17(1), NHS Shetland confirms that it does not hold the information requested as these NHS Shetland patients are treated by NHS Grampian. An FOI request to NHS Grampian can be submitted to the following email address: gram.foi@nhs.scot