Duchene Muscular Dystrophy - FOI Response Register

1.    Does your organisation commission any services for people with DMD?

No

2.    If no, does your organisation expect to commission services for DMD in the future?

No

3.    If yes, what services for people with DMD does your organisation commission?

Not applicable

4.    How many people with DMD does your organisation serve?

<5

NHS Shetland considers that proving more specific information carries a high risk of identifying individuals. As such and in accordance with FOISA s 16(1), NHS Shetland confirms that it holds the information requested but that it is exempt from disclosure under FOISA s 38(1)(b) as read with s 38 (2A) as the information constitutes personal data and disclosure would breach the confidentiality of the data subjects.

5.    Does your organisation have any DMD-specific (or muscle-wasting disease-specific) policies or guidance?

No

6.    Do any of your organisation’s strategies, objectives, plans, performance indicators, audits, inspections, or similar, cite DMD (or any muscle-wasting disease) or use either as a metric?

No

7.    Is your organisation aware of the work of DMD Care UK (https://dmdcareuk.org/)?

Yes