- FoI Number
- 2024-199
- Subject
- Neuromuscular Staff
- Date Received
- 04/07/2024
- Request and Response
-
- How many people are currently assessed as living with muscular dystrophy conditions within the Health Board area?
The figure provided below is for the number of patients diagnosed with Read Code F39 Muscular dystrophies and other myopathies.
44
- How many individuals do you currently employ in the following roles to provide services to neuromuscular patients:
- a Paediatrician 1
- Paediatric Neurologist 0
- Neurologist 0
- Rehab Consultant 0
Where these roles exist, please provide details of the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients.
Gilbert Bain Hospital, Lerwick, Shetland
- Do you employ a Respiratory professional that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A as some of this care will be provided under a more generalist role
- Do you employ a Cardiology / Anaesthetics professional that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A as some of this care will be provided under a more generalist role
- Do you employ a Physiotherapy professional that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A as some of this care will be provided under a more generalist role
- Do you employ a Neuromuscular Specialist Nurse that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A as some of this care will be provided under a more generalist role
- Do you employ a Neuromuscular Care Adviser/ Support Services that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A as some of this care will be provided under a more generalist role
- Do you employ a Genetics professional that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A
- Do you employ a Neurophysiology professional that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A
- Do you employ a Myotonic Dystrophy Service that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A
- Do you employ a Neuropathology professional that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A
- Do you employ an AHP / Other that provides services to neuromuscular patients? If yes, how many; on a full or part time basis; the hospital and regional service they work in; and whether the services provided are for paediatric and/or adult patients. Please specify if the number of professionals employed for this role has increased or decreased in number in the last 10 years.
N/A
