Friedreich Ataxia - FOI Response Register

1. Of all patients diagnosed with Hereditary Ataxia (ICD-10 Code G11), how many have a specific diagnosis of Friedreich Ataxia?

NHS Shetland uses the ICD 10 coding system in secondary care. The figures provided for Friedreich Ataxia patients are for the number of inpatients where ICD 10 code G11.1 was listed as Main Condition or Other Condition.

Nil

2. How many Friedreich Ataxia patients have been diagnosed in the last 12 months?

See response to Q1

3. How many Friedreich Ataxia patients have had an appointment in the last 12 months in the following departments?

·           Cardiology

·           Neurology

·           Neuromuscular

·           Specialist movement disorders

·           Any other department

See response to Q1

4. How many Friedreich Ataxia patients fall within the following age groups?

·     0-13

·     14-15

·     16-40

·     40+

See response to Q1

5.  How many Friedreich Ataxia patients have you discharged in the last 12 months?

See response to Q1

6. How many Friedreich Ataxia patients have you referred to another specialist centre?

See response to Q1

7. Does your centre have a specialist movement disorders clinic?

No

·           If so, how many patients with a diagnosis of Friedreich Ataxia have visited the clinic in the last 12 months?

See response to Q1

8. Does your centre have a specialist Ataxia Clinic, as part of the specialist movement disorders clinic?

No

·           If so, how many patients with a diagnosis of Friedreich Ataxia have visited the clinic in the last 12 months?

See response to Q1