Down’s Syndrome - FOI Response Register

I am conducting research into perceptions of Down Syndrome in antenatal care and would like to request copies of communication materials sent to expectant women within your Trust.

Specifically, I would appreciate copies of the following:

1. Letters sent to expectant women advising of screening test results following combined or quadruple screening for Down Syndrome. If the content differs based on the likelihood of a high or low chance result, please provide examples of both.

Sample letters attached.

Downs Edwards Pataus low risk letter

Downs ONLY low risk letter

If high chance result, letter not sent as the woman is contacted directly.

2. Letters or result notifications from Non-Invasive Prenatal Testing (NIPT), including examples for both high and low chance results if they differ.

 Letter not sent as the woman is contacted directly

3. Any information shared with expectant women regarding these tests (combined/quadruple screening and NIPT), including letters, leaflets, or signposting materials.

https://www.nhsinform.scot/healthy-living/screening/pregnancy/pregnancy-screening/

4. Any materials provided to expectant women about Down syndrome itself, including guidance on pregnancy and care following an antenatal diagnosis.

Diagnostics are provided via NHS Grampian, who advise on antenatal and intrapartum care, which is then a shared care pathway.